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berubetto
berubetto
Member Since 11 Feb 2012Offline Last Active Oct 03 2019 07:08 PM
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berubetto
I've been even more absent because my best friend—my non-romantic, separate-location-residing life-partner—died from a massive heart attack in his late 40s because he was TOO STUBBORN TO GO TO THE EMERGENCY ROOM. Grr. This also flared up all my illness' symptoms.
Dec 02 2015 07:55 AM
This status update has reached the maximum number of replies allowed
berubetto
Anyone want premium, organic, Pacific Northwest bunny poop? No? Anyone? (I'm disabled from a constant illness & my most reliable litter-box volunteer was stealing money from me. Sigh. I gotta find a local composting fanatic!)
Aug 27 2015 08:57 AM
berubetto
Many bad things happened again; I did what I could. One guy I've seen a handful of times breaks a promise to me & is arrogantly defensive, saying out of nowhere that I'm not doing everything I could to perfectly manage my health. WHY IS THIS THE THING THAT BOTHERS ME?!? Whew. Thanks.
Jul 29 2015 10:50 PM
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Horn
I've been hearing the same things. Like how I'm a hypochondriac and how "things can't be as bad as I say they are" and so on. It's pretty discouraging, as well as convincing; for a while I really thought I was exaggerating like people were telling me, and tried telling myself to get over it and grow up. It didn't make it hurt any less.
Jul 30 2015 10:12 AM -
berubetto
It's way belated of me, but Haru~ & Horn, your replies helped. Thanks!
Aug 27 2015 03:41 PM
berubetto
I kept typing because the Status Update text box let me, but now my posts end in ... and I can't expand them. Is that expected behavior, or do I just not know where to click? Thanks!
Jul 15 2015 08:32 AM
berubetto
Sorry I didn't reply before. MY AC DIED. Because of the nature of Still's Disease, I got reallllllly sick. So sick, I LOST MY PAIN MEDS. Well, 1.5 day's worth. And it was near the refill time, so I had to spend three nights without pain meds. Well, the last was fine, because thanks to Washington State voters, I was able to get cannabis tincture once I found someone who was able to go get it for me. Of course, my helper is a morning person with a morning shift, and the local MJ sto...
Jul 15 2015 06:01 AM
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berubetto
BTW again, I'm allergic to my new AC. [head meets desk] I had my helper wash out the tubing & filter, so although my throat's a little irritated, at least it doesn't hurt to breathe & I'm not coughing anymore. The rest should off-gas eventually. I swear, my body's like a needle on a seismograph. Uh, the earthquake-detector-thingy, right? Too tired to look it up.
Jul 15 2015 06:06 AM -
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berubetto
Thanks for asking, really. I'm not going to die, I have a good sense of humor, and some childhood friends have offered to help me with paperwork even though they're on the East Coast & I'm in the Pacific Northwest of the USA so... I'm okay.
I've made a lot of progress over the past four years and, although recently I got a bit worse with my body symptoms (fever, pain, dizziness, passing out, nausea, visual disturbances, allergies) and overall stillsdisease...
Jul 15 2015 08:08 AM
berubetto
I'm trying to figure out if I can be an occasional, back-up scanlation proofreader, even though I'm so constantly ill that I'm often home-bound. I'm thinking through my limitations and how to work around them. Certainly, I'm not reliable in the sense of tasks such as answering emails quickly, but I was a professional tech writer, editor and trainer. I like keeping my skills up to prepare for all best possible futures, so I've done wiki editing as I could with good resu...
Jun 29 2015 09:21 AM
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2hot4you
ofc you can, i think a lot of groups can use you, even though youre occasional. Just need to be clear you wont be there 24/7
Jun 29 2015 09:32 AM
berubetto
Updated folk chant: When in danger or in doubt, run in circles, scream and shout, or if you're me just go pass out.
Aug 03 2014 10:23 AM
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Yan Q
Well when I used to live in Australia, I'd try and buy second, or buy Japanese (they were cheaper), now that I'm in Indonesia for work, I buy the local language, since I have to learn it anyway.
Otherwise I buy online, yeah.
Aug 03 2014 10:52 AM -
osakaki
I've picked up several that way. They don't usually have what I'm after. >_> But browsing the big wall is a lot of fun, too. Found a couple random things that way as well.
Aug 03 2014 11:47 AM -
Yan Q
Well, when you get to know the shop staff, I leave them with a list of things I'm after and they'll contact me if the buy any pre-owned (or books they think I'd like)
Aug 03 2014 01:57 PM
berubetto
Oops. http://crazytje.be/ will be closing 8/4. You've got 3 extra days!
Jul 30 2014 05:43 AM
